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Introducing Mia!

Age 7, Heterotaxy Syndrome

They call her “Mighty Mia,” and the nickname fits the bill. Mia was born with Heterotaxy Syndrome, very rare birth defect that affects the heart and other organs, and had the most complex array of heart defects her medical team had ever seen, requiring a series of heart surgeries and intense therapy.

While she will live with her condition forever, Mia is currently off all medications, and is no longer reliant on oxygen or a feeding tube. She is dependent on a pacemaker and will require ongoing cardiology care, but Mia has beat the odds. When you ask her about her hospital stays, she doesn’t concentrate on the negative; instead she recounts stories of time spent with her favorite doctors and nurses and, like most 7-year-olds, remembers the delicious macaroni and cheese.

Mia is St. Luke’s Children’s 2018 Children’s Miracle Network Hospitals Champion for Idaho. Mia will spend the year visiting local CMN Hospitals partners, sharing her story, attending events, and helping to increase awareness about the amazing work being done at St. Luke’s Children’s and in children’s hospitals across the country.